Online Privacy Policy

Privacy Policy 


Your information, our commitment

Your privacy and the protection of your personal information are very important to us.
This policy outlines how we collect, use and disclose your personal information.

What is personal information?

Personal information is information or an opinion about an identified individual, or an
individual who is reasonably identifiable:

(a) whether the information or opinion is true or not; and
(b) whether the information or opinion is recorded in a material form or not.

Whose personal information do we collect?

We collect personal information from our donors, sponsors, key stakeholders, people
who attend our events, people who apply for and receive funding from the Foundation,
people who work on the Foundation’s premises, and employees.

What types of personal information do we collect?

The types of personal information we collect from you depends on the circumstances in
which the information is collected.

The Foundation may collect contact details including your name, organisation details
(including ABN), address, email address and phone numbers.

If you apply for employment, we may also collect information for the purpose of
considering your application including the results of background checks, your
qualifications and resume as well as reference information from your nominated

Where you use the Foundation’s website, we may collect web site usage information
using Google Analytics, such as the IP address you are using, the name of your Internet
service provider, your browser version, the website that referred you to us and the next
website you go to, the pages you request, the date and time of those requests and the
country you are in.

Except where you provide it to us via the website, we do not collect personal information
such as your name, mailing address, email address or phone number when you are
browsing our website.

The Foundation generally does not require you to disclose any sensitive information to
us (such as health information). If you do provide sensitive information to us for any
reason (for example, if you provide us with information about a disability you have),
including where this information is requested by us, you consent to us collecting that
information and to us using and disclosing that information for the purpose for which you
disclosed it to us, and as permitted by the Privacy Act and other relevant laws.

The Foundation does not collection health information.
In addition to the types of personal information identified above, the Foundation may
collect personal information as otherwise permitted or required by law.

How do we collect your personal information?

The Foundation collects personal information in a number of ways including via
telephone, email, mail, fax or through the Foundation’s website. The most common
sources from which we may collect your personal information are:


  • directly from you when you provide it to us (for example, when you deal with us

         through our website “Donation form”);

  • from publically available sources, including the Foundation’s social media pages;
  • from government departments and authorities;
  • from third parties (for example, from referees if you apply for a position as an

        employee with us);

  • from tertiary institutions, such as universities, about students and academics

        who conduct work on the Foundation’s premises; and

  • from health providers in relation to patients who are subject of research by the


What if you choose not to provide us with personal

Where practical we will give you the option of not identifying yourself, or using a
pseudonym, when dealing with us.

How do we use and disclose your personal information?

The purposes for which we use and disclose your personal information will depend on
the circumstances in which we collect it. Whenever practical we endeavour to inform you
why we are collecting your personal information, how we intend to use that information
and to whom we intend to disclose it, at the time we collect your personal information.

We may use or disclose your personal information:

  • for the purposes for which we collected it (and related purposes which would

         be reasonably expected by you);

  • for other purposes to which you have consented; and
  • as otherwise authorised or required by law.

In general we collect, use and disclose your personal information so that we can work
together, operate our programs, and further our mission and objectives.

Some of the specific purposes for which we collect, use and disclose personal
information are as follows:

  • to process donations;
  • to maintain contact with our donors;
  • to recognise the support of our major donors in our publications

        (however, if requested, we will not display the donor’s details);

  • to add you to our mailing list or to respond to your request for information

        (including via the Foundation’s website or via an email you send to us);

  • to provide you with newsletters, promotional material or other information about

         the Foundation and its activities (including by electronic messages such as email and SMS);

  • the inform our supporters about our work and mission; and
  • to verify your identify.

We may also use and disclose your personal information for the purpose of direct
marketing to you where:

  • you have consented to us doing so; or
  • it is otherwise permitted by law.

You can unsubscribe to our direct marketing, or change your contact preferences, by
contacting us, using the contact details at the end of this policy.

Links, Cookies and use of the Foundation’s website

The Foundation’s website contains links to other sites. This Privacy Policy applies to the
Foundation’s website and not to any linked sites. We encourage you to read the privacy
policies of each website

The Foundation may use tracking technology such as “cookies” on the website and in
emails you receive from us. The use of cookies is an industry standard and helps us
monitor the effectiveness of our advertising and how visitors use the website. A “cookie”
is a small data element stored by your web browser on your computer system. The
website “cookies” do not store your email address or other personal information about
you. We use this technology to generate statistics and measure site activity to improve
the usefulness of visits to our website.


The security of your personal information is important to us. The Foundation will take
reasonable steps to protect your personal information from misuse, loss and
unauthorised access, modification and disclosure. We manage your personal
information in accordance with the Privacy Act 1988, as well as the Acceptable Use of
Information and Communications Technology (ICT) Policy published by the Department
of Health.

We store personal information on computer databases and/or in hard copy and will take
reasonable commercial physical and electronic security measures to protect any records
that we hold which contain your personal information. We destroy personal information
in a secure manner when we no longer need it.

Please notify us immediately if you become aware of any breach of security.

Can you get access to view and correct your personal

Generally, you have the right to know all the personal information we hold about you.
You can also request that we correct any personal information we hold about you. You
can request access to view and/or correct this information by contacting us, using the
contact details at the end of this policy.

In some circumstances, we may refuse you access to your personal information and if
this occurs we will write to you to explain our reasons.

Some examples of when you might be denied access are if:

  • access will pose a threat to the life or health of someone;
  • access would have an unreasonable impact on another person’s privacy;
  • information relates to anticipated or existing legal proceedings; or
  • giving access would be unlawful.

Contacting us with questions or complaints

If you are concerned with the Foundation’s use of your personal information, wish to
make a comment or query about privacy, seek access to correct or update personal
information we hold about you, you can contact us as follows:


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